TY - JOUR
T1 - Enabling secure and self determined health data sharing and consent management
AU - Welzel, Cindy
AU - Ostermann, Max
AU - Smith, Hannah Louise
AU - Minssen, Timo
AU - Kirsten, Toralf
AU - Gilbert, Stephen
PY - 2025
Y1 - 2025
N2 - Digital health tools generate vast sensitive data not only from clinical settings but also from apps and wearables. Effective consent management builds trust, increasing willingness for data sharing. Technologies like blockchain, self-sovereign identity, and de-identified tokens enable tracking of consent and data utilization to enhance transparency and user control. This paper presents a novel conceptual and technical framework by reviewing these technologies for their integration into a cohesive consent management system in order to balance data accessibility and privacy, encouraging responsible data sharing to improve healthcare outcomes.
AB - Digital health tools generate vast sensitive data not only from clinical settings but also from apps and wearables. Effective consent management builds trust, increasing willingness for data sharing. Technologies like blockchain, self-sovereign identity, and de-identified tokens enable tracking of consent and data utilization to enhance transparency and user control. This paper presents a novel conceptual and technical framework by reviewing these technologies for their integration into a cohesive consent management system in order to balance data accessibility and privacy, encouraging responsible data sharing to improve healthcare outcomes.
U2 - 10.1038/s41746-025-01945-z
DO - 10.1038/s41746-025-01945-z
M3 - Review
C2 - 40885802
SN - 2398-6352
VL - 8
JO - Nature PJ Digital Medicine
JF - Nature PJ Digital Medicine
M1 - 560
ER -