Frequency of participation of 8-12-year-old children with cerebral palsy: a multi-centre cross-sectional European study

Susan I Michelsen; Esben M Flachs; Peter Uldall; Eva L Eriksen; Vicki McManus; Jackie Parkes; Kathryn N Parkinson; Ute Thyen; Catherine Arnaud; Eva Beckung; Heather O Dickinson; Jérôme Fauconnier; Marco Marcelli; Allan Colver

doi:10.1016/j.ejpn.2008.03.005

Frequency of participation of 8-12-year-old children with cerebral palsy: a multi-centre cross-sectional European study

Susan I Michelsen, Esben M Flachs, Peter Uldall, Eva L Eriksen, Vicki McManus, Jackie Parkes, Kathryn N Parkinson, Ute Thyen, Catherine Arnaud, Eva Beckung, Heather O Dickinson, Jérôme Fauconnier, Marco Marcelli, Allan Colver

Publikation: Bidrag til tidsskrift › Tidsskriftartikel › Forskning › peer review

120 Citationer (Scopus)

Abstract

Udgivelsesdato: 2009-Mar

Originalsprog	Engelsk
Tidsskrift	European Journal of Paediatric Neurology
Vol/bind	13
Udgave nummer	2
Sider (fra-til)	165-77
Antal sider	12
ISSN	1090-3798
DOI	https://doi.org/10.1016/j.ejpn.2008.03.005
Status	Udgivet - 2008

Bibliografisk note

Keywords: Cerebral Palsy; Child; Cross-Sectional Studies; Disability Evaluation; Disabled Children; Europe; Family; Female; Humans; Logistic Models; Male; Quality of Life; Questionnaires; Schools; Sickness Impact Profile; Social Environment

Adgang til dokumentet

10.1016/j.ejpn.2008.03.005

Citationsformater

Michelsen, S. I., Flachs, E. M., Uldall, P., Eriksen, E. L., McManus, V., Parkes, J., Parkinson, K. N., Thyen, U., Arnaud, C., Beckung, E., Dickinson, H. O., Fauconnier, J., Marcelli, M., & Colver, A. (2008). Frequency of participation of 8-12-year-old children with cerebral palsy: a multi-centre cross-sectional European study. European Journal of Paediatric Neurology, 13(2), 165-77. https://doi.org/10.1016/j.ejpn.2008.03.005

Michelsen, SI, Flachs, EM, Uldall, P, Eriksen, EL, McManus, V, Parkes, J, Parkinson, KN, Thyen, U, Arnaud, C, Beckung, E, Dickinson, HO, Fauconnier, J, Marcelli, M & Colver, A 2008, 'Frequency of participation of 8-12-year-old children with cerebral palsy: a multi-centre cross-sectional European study', European Journal of Paediatric Neurology, bind 13, nr. 2, s. 165-77. https://doi.org/10.1016/j.ejpn.2008.03.005

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title = "Frequency of participation of 8-12-year-old children with cerebral palsy: a multi-centre cross-sectional European study",

abstract = "Participation in home, school and community is important for all children; and little is known about the frequency of participation of disabled children. Frequency of participation is a valuable outcome measure for evaluating habilitation programmes for disabled children and for planning social and health services. We investigated how frequency of participation varied between children with cerebral palsy and the general population; and examined variation across countries to understand better how the environmental factors such as legislation, public attitudes and regulation in different countries might influence participation. We undertook a multi-centre, population-based study in children with and without cerebral palsy. Working from the Life-H instrument, we developed a questionnaire to capture frequency of participation in 8-12-year-old children. In nine regions of seven European countries, parents of 813 children with cerebral palsy and 2939 children from the general populations completed the questionnaire. Frequency of participation for each question was dichotomised about the median; multivariable logistic regressions were carried out. In the general population, frequency of participation varied between countries. Children with cerebral palsy participated less frequently in many but not all areas of everyday life, compared with children from the general population. There was regional variation in the domains with reduced participation and in the magnitude of the differences. We discuss how this regional variation might be explained by the different environments in which children live. Attending a special school or class was not associated with further reduction in participation in most areas of everyday life.",

author = "Michelsen, {Susan I} and Flachs, {Esben M} and Peter Uldall and Eriksen, {Eva L} and Vicki McManus and Jackie Parkes and Parkinson, {Kathryn N} and Ute Thyen and Catherine Arnaud and Eva Beckung and Dickinson, {Heather O} and J{\'e}r{\^o}me Fauconnier and Marco Marcelli and Allan Colver",

note = "Keywords: Cerebral Palsy; Child; Cross-Sectional Studies; Disability Evaluation; Disabled Children; Europe; Family; Female; Humans; Logistic Models; Male; Quality of Life; Questionnaires; Schools; Sickness Impact Profile; Social Environment",

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AU - Michelsen, Susan I

AU - Flachs, Esben M

AU - Uldall, Peter

AU - Eriksen, Eva L

AU - McManus, Vicki

AU - Parkes, Jackie

AU - Parkinson, Kathryn N

AU - Thyen, Ute

AU - Arnaud, Catherine

AU - Beckung, Eva

AU - Dickinson, Heather O

AU - Fauconnier, Jérôme

AU - Marcelli, Marco

AU - Colver, Allan

N1 - Keywords: Cerebral Palsy; Child; Cross-Sectional Studies; Disability Evaluation; Disabled Children; Europe; Family; Female; Humans; Logistic Models; Male; Quality of Life; Questionnaires; Schools; Sickness Impact Profile; Social Environment

PY - 2008

Y1 - 2008

N2 - Participation in home, school and community is important for all children; and little is known about the frequency of participation of disabled children. Frequency of participation is a valuable outcome measure for evaluating habilitation programmes for disabled children and for planning social and health services. We investigated how frequency of participation varied between children with cerebral palsy and the general population; and examined variation across countries to understand better how the environmental factors such as legislation, public attitudes and regulation in different countries might influence participation. We undertook a multi-centre, population-based study in children with and without cerebral palsy. Working from the Life-H instrument, we developed a questionnaire to capture frequency of participation in 8-12-year-old children. In nine regions of seven European countries, parents of 813 children with cerebral palsy and 2939 children from the general populations completed the questionnaire. Frequency of participation for each question was dichotomised about the median; multivariable logistic regressions were carried out. In the general population, frequency of participation varied between countries. Children with cerebral palsy participated less frequently in many but not all areas of everyday life, compared with children from the general population. There was regional variation in the domains with reduced participation and in the magnitude of the differences. We discuss how this regional variation might be explained by the different environments in which children live. Attending a special school or class was not associated with further reduction in participation in most areas of everyday life.

AB - Participation in home, school and community is important for all children; and little is known about the frequency of participation of disabled children. Frequency of participation is a valuable outcome measure for evaluating habilitation programmes for disabled children and for planning social and health services. We investigated how frequency of participation varied between children with cerebral palsy and the general population; and examined variation across countries to understand better how the environmental factors such as legislation, public attitudes and regulation in different countries might influence participation. We undertook a multi-centre, population-based study in children with and without cerebral palsy. Working from the Life-H instrument, we developed a questionnaire to capture frequency of participation in 8-12-year-old children. In nine regions of seven European countries, parents of 813 children with cerebral palsy and 2939 children from the general populations completed the questionnaire. Frequency of participation for each question was dichotomised about the median; multivariable logistic regressions were carried out. In the general population, frequency of participation varied between countries. Children with cerebral palsy participated less frequently in many but not all areas of everyday life, compared with children from the general population. There was regional variation in the domains with reduced participation and in the magnitude of the differences. We discuss how this regional variation might be explained by the different environments in which children live. Attending a special school or class was not associated with further reduction in participation in most areas of everyday life.

U2 - 10.1016/j.ejpn.2008.03.005

DO - 10.1016/j.ejpn.2008.03.005

M3 - Journal article

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SN - 1090-3798

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SP - 165

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JO - European Journal of Paediatric Neurology

JF - European Journal of Paediatric Neurology

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