Seminar with Dr Danya Vears

Description

Storage and sharing of genomic data following diagnostic sequencing is critical to the future of genomic medicine. Data sharing increases the chance of finding a diagnosis for both current and future patients and can benefit clinical and pharmaceutical research. Yet, the storage and sharing of genomic data raise many ethical and practical challenges. Surprisingly few studies have explored public perspectives on how and where data should be stored, with whom it should be shared, and how to obtain meaningful consent to do so. In this presentation, Dr Danya Vears will discuss these challenges and discuss the results of a focus group study conducted with members of the general public that explored these issues.

Period	23 Jun 2022
Event type	Seminar