Living with Usher Syndrome: Patient and Physician Perspectives

Helene Lønborg-Møller, Yousif Subhi, Line Kessel*

*Corresponding author for this work

Research output: Contribution to journalComment/debateResearchpeer-review

3 Citations (Scopus)
20 Downloads (Pure)

Abstract

This commentary article is co-authored by a patient with Usher syndrome type 2A. The patient kindly shares her experience of living a life marked by the severe dual sensory loss associated with Usher syndrome. The experiences of the patient are put into perspective by two ophthalmologists associated with the Ophthalmological Department at Rigshospitalet, Denmark.

Original languageEnglish
JournalOphthalmology and Therapy
Volume9
Issue number3
Pages (from-to)1-6
ISSN2193-8245
DOIs
Publication statusPublished - 2020

Keywords

  • Blindness
  • Hearing impairment
  • Psychological disease burden
  • Usher syndrome

Cite this