"My kids are looking after me": How children support continuity of care in households of displaced people living with cardio-meatobolic diseases, Juba, South Sudan

Tania Dræbel, Kuol Geng Majoa William, Bill Gueth Kueil Walhook, Flora Lado, John Yoh, Melha Biel, Dricile Ratib , Bishal Gyawali, David Kyaddondo, Morten Skovdal

Research output: Contribution to conferencePosterResearchpeer-review

Abstract

BACKGROUND We know little about children’s role in supporting continuity of cardiometabolic disease care for displaced persons.
We explore shifts in care roles and responsibilities within households affected by cardiometabolic diseases in Protection of Civilian Camps (POC), Juba, South Sudan. METHODOLOGY
Community-Based Peer Research.
20 Interviews with Internally Displaced Persons living with cardio-metabolic diseases.
Transect walks in POC camps.
FINDINGS
Adults ordinarily caring for sick family members are often either sick themselves, dead, or away (migratory work).
In this context, children and young people (often girls) play significant roles in maintaining continuity of care for people living with cardiometabolic diseases (see figure).
IMPLICATIONS
Need for heightened attention to the lives of young carers.
Need to understand how existing health worker structures can work with, and support, young carers.

Original languageEnglish
Publication date2023
Publication statusPublished - 2023
EventContinuity of chronic health care among forcibly displaced persons -
Duration: 13 Sep 202314 Sep 2023

Conference

ConferenceContinuity of chronic health care among forcibly displaced persons
Period13/09/202314/09/2023

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