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Transition of adolescents with inflammatory bowel disease - are the pediatric teams up to the task?

  • Mette Hald
  • , Katrine Carlsen*
  • , Vibeke Wewer
  • *Corresponding author for this work

Research output: Contribution to journal › Journal article › Research › peer-review

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Abstract

Our aim was to describe the challenges of the transition process of adolescents with inflammatory bowel disease (IBD), as seen from a pediatric-care perspective, to clarify the key obstacles and propose how to move forward. Semi-structured individual interviews of pediatric gastroenterologists and nurses were analyzed and interpreted according to the principles of social science. It is a challenge for the pediatric team to continuously match, support, and gently guide the ever-changing adolescent patient. All adolescent patients should be offered guidance regardless of their starting point, and specific individual needs should be taken into consideration. Adolescents burdened by psychosocial challenges require extra support. Early and continued interdisciplinary effort is essential. Collaboration with the parents must be continuously adapted to prepare them for their new roles and responsibilities. The shift from the pediatric family-focused approach to the individualistic approach of the Adult Gastroenterology Department signifies a fundamental change. Equipping adolescents with disease-management skills remains a comprehensive task. The following crucial questions remain: Who is capable of performing the transition? Who can dedicate the necessary resources for performing the transition? A transition center led by both pediatricians and adult gastroenterologists in an interdisciplinary setting that includes transition-trained persons may be the solution.

Original languageEnglish
Article number900
JournalChildren
Volume8
Issue number10
Number of pages10
ISSN2227-9067
DOIs
Publication statusPublished - 2021

Bibliographical note

Publisher Copyright:
© 2021 by the authors. Licensee MDPI, Basel, Switzerland.

Funding

The interviewed staff at the Pediatric Gastroenterology team, Department of Pediatrics, Hvidovre University Hospital, is acknowledged for their contribution to the article.

Keywords

  • Adolescents
  • Children
  • Inflammatory bowel disease
  • Parents
  • Transfer
  • Transition

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